Joined Jul 16 2013
39 years old
Hello all.. My name is shaun and the beautiful little girl you see in the picture is my daughter Kyla!! She has been diagnosed with a very rare Disease called Leukodystrophy.. There is a total of 41 different types of this disease, and she hasn't been classified under any of them. The Doctors are saying it's something new, but they dont know what. She had a severe Stroke last August which destroyed the whole right side of her brain and she now has much difficulty using the left side of her body!! Kyla will be 6 this september, and being in and out of the hospitals since she was 5 months old has taken a toll on her and she now hates leaving her home which has altered my lifestyle. I cannot work due to her 24/7 medical care and living on 700 a month is a struggle but in the end i get to see her beautiful smile EVERYDAY!!